5 yr old daughter with lip, cheek, and tongue VM - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 09-25-2010, 06:26 AM
BeckyC21 BeckyC21 is offline
Junior Member
 
Join Date: Sep 2010
Posts: 2
Default 5 yr old daughter with lip, cheek, and tongue VM

I am looking for any information available from those who have experienced or have known someone with a lip, cheek and tongue venous malformation. I feel like I need more information on what to expect as my daughter grows. She has already undergone treatment on her lip from Seattle Childrens. Unfortunately my daughters malformation is in her entire tongue which also runs down into her throat. We have had to remove her tonsills because the malformation was pushing on them causing her to choke and gag her food. Now we are concerned because my daughter snores and it has become louder which the doctors believe is due to the VM growing into her airway. My daughter looks like a normal healthy kid and since her treatment on her lip you can barely tell she has a VM untill she sticks out her tongue. She has a slight mark on her lip that has began to grow back but with laser treatment it sounds like it will shrink up withoug additional surgeries.

If anyone has any additional info they give we would greatly appreciate it!

Thank you!
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump