My Treatments with PWS. - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 02-25-2004, 10:08 PM
Figliulo
 
Posts: n/a
Default My Treatments with PWS.

My name is Hal Figliulo. I am from Illinois.
I just turned 49 on 2/3. I am covered with PWS. Read about my experience with PWS post for details.
I have tried most treatments.
My first experience was about 13. I had PWS from birth. We were told it would fade. It didn't. I was too young for most treatments until High school.
We tried Dermabrasion. The doctor scraped away several layers of skin then cauterized the area. It was only 10% effective & cause some minimal scaring. The only other treatments at the time were 'reverse tatooing'. Injected skin colored dye. They Doctors said it would look terrible because of the large area. It covers 80% of my face below my eyebrows. The other was radiation. Luckily that was refused due to the large area also. The amount of radiation would have been fatal. I have learned that some of the people that had radiation treatments developed skin cancer. So I guess that was a blessing. I also tried cosmetics to cover the problem. My nose was so red it showed through. It looked like I had make up also. I wasn't sure which was worse. Taking the abuse because of my looks or wearing make up being a male.
That was it until about 1980. I met Dr Weingarten from Evanston Hospital. He told me he was experimenting with a new lazer procedure for PWS. The Argon Lazer. It gave me 2nd degree burns. It worked but was very expensive & would require many treatments. The treatments could only be done several months apart because it took several months to heal.
Some 15+ years ago I contacted Dr. Jerome Garden from the very respected Northwestern using the Pulse Dye Lazer. This also worked. It was wonderful procedure. No anesthetic. Bruising for a couple of weeks. I could be treated many times. It was very expensive at that time & insurance covered very little.
A couple of year later I tried some treatment used to close Vericose Veins. This treatment failed miserably.
A couple of years later the pulse-dye laser became generally available & less expensive, But the HMO I belonged to wouldn't cover it.
I gave up. I have lived with it for all these years. I just ignored all of the terrible treatment given to me by society.

I have been considering going back for treatments. I figure it must have improved & the costs come down.
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Child or adult on maintenance treatments? alexasmommy Port Wine Stain Help and Resources 4 05-20-2013 05:44 AM
Chiropractic Treatments for Microcystic Lymphatic Malformations on Labia Minora bellandme Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 6 07-28-2009 03:35 AM
alternative treatments to laser ellie Port Wine Stain Help and Resources 2 10-14-2006 03:21 AM
Different Laser Treatments stcynthia Port Wine Stain Help and Resources 3 10-06-2005 02:18 AM
Do insurance companies pay for laser treatments? Annicamer Port Wine Stain Help and Resources 2 09-25-2005 02:42 PM