Practical tips in monitoring Propranolol? - Nervous mom here. - Page 2 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment.
Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #11  
Old 12-14-2010, 02:31 PM
phoenixihc phoenixihc is offline
Junior Member
 
Join Date: Nov 2010
Posts: 17
Default

momof3inpa...ours is flavoured as well... AMAZING!! I agree
Reply With Quote
  #12  
Old 01-11-2011, 06:52 PM
jennacl jennacl is offline
Junior Member
 
Join Date: Nov 2010
Posts: 7
Default

Thank you all for your responses and help! My daughter has been on propranolol for the past 7 weeks and she's responded so well to it. And I think i can do a big sigh of relief that she has had no side effects. I finally spoke with her doctor and I can let her sleep throughout the night. Thank goodness!! The lack of sleep and administering this drug has been brutal. Thank you again everyone!
Reply With Quote
  #13  
Old 01-14-2011, 05:36 AM
mperron mperron is offline
Member
 
Join Date: Feb 2010
Posts: 65
Default

I too had the same problem with my little guy in terms of getting him on a schedule. I emailed his cardiologist and explained my delima. My son is on 3 doses a day. The cardiologist said that it is okay to give dose a few hours late or earlier if needed. He said that their can be anywhere from 6-10hours in between doses.

The cardiologist and specialist weren't too concerned about the rigid feeding schedule because my son wasn't showing any signs of hypoglycema (lethargy, cold hands). My understanding is that although propranolol is a beta-blocker it doesn't necessarily lower the blood pressure for all infants as they are on a low dose compared to those infants on the drug for heart conditions. But of course, please check with your doctor to clarify.

Hope that helps!

Cheers, Melanie
Reply With Quote
  #14  
Old 01-28-2011, 08:23 PM
Mae Mae is offline
Junior Member
 
Join Date: Dec 2010
Posts: 9
Default

great info! thanks. just started this med yesterday for my 19 week old daughter. she sleeps thru the night but has a quick feed at 4o am. barly wakes up so they said not to mess with that.

she gets it 3 times a day at 9 in the morning 3 in the afternoon and at 9 at night. i can see this beeing a pain for going out but will be worth it.

good luck to all and thanks
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump