Thank you all for your responses and help! My daughter has been on propranolol for the past 7 weeks and she's responded so well to it. And I think i can do a big sigh of relief that she has had no side effects. I finally spoke with her doctor and I can let her sleep throughout the night. Thank goodness!! The lack of sleep and administering this drug has been brutal. Thank you again everyone!
I too had the same problem with my little guy in terms of getting him on a schedule. I emailed his cardiologist and explained my delima. My son is on 3 doses a day. The cardiologist said that it is okay to give dose a few hours late or earlier if needed. He said that their can be anywhere from 6-10hours in between doses.
The cardiologist and specialist weren't too concerned about the rigid feeding schedule because my son wasn't showing any signs of hypoglycema (lethargy, cold hands). My understanding is that although propranolol is a beta-blocker it doesn't necessarily lower the blood pressure for all infants as they are on a low dose compared to those infants on the drug for heart conditions. But of course, please check with your doctor to clarify.
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