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Help and Resources for Hemangiomas
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01-31-2011, 04:58 AM
leocel
Junior Member
Join Date: Jan 2011
Posts: 2
Kts
I have a son 6yrs old,he was born with a klippel trenaunay syndrome.Does anyone knows or who have this kind of congenital hemangioma,vascular disorder.could anyone share their story?
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01-31-2011, 10:38 AM
missy
Administrator
Join Date: Apr 2006
Posts: 1,621
Hi and welcome!
I just wanted to say that other parents will be in soon to post.
Tell us more about your son!
Missy
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02-03-2011, 01:44 AM
nickbar
Senior Member
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,075
I would also like to point you to the KT Foundation website. There is a lot of great information on their site
http://www.ktfoundation.org/
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Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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4
02-03-2011, 04:21 AM
leocel
Junior Member
Join Date: Jan 2011
Posts: 2
thank you for letting me know about this website.i really appreciate.
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