help- how to push for surgery
My daughter Willa is 14 months old and has been getting laser treatments for two hemangiomas, one on her stomach and one on her forehead, since she was about six months, with almost no improvement. She had one cortisone injection on the stomach hemangioma (doc wanted to see how she reacted there first) and it only made a tiny tiny difference. I'm starting to get impatient and concerned. She's a very smart girl and is becoming aware of the one on her forehead already (when she pulls on it I tell her its her strawberrry mark and to be gentle, and she now points to it and calls it her "mawk") and of course people comment, some politely, some rudely, and I want to be sure that she doesn't have any emotional fallout from this.
I have an appointment with her dermatologist soon, and I think he'll probably be focusing on another injection or more laser, but I would like to push for a referral to a surgeon. I mean, health and safety is my first concern, of course, but from my research it seems like she would be a very good candidate for surgery if we found a good surgeon. (I live in Georgia, btw, if anyone has a surgeon they'd recommend)
Finally I get around to my question. Does anyone have advice on how to insist on taking more aggressive measures, or any suggestions of questions I should ask about surgery... gee that sounds vague... basically I'm just an anxious mommy who's eager to take action, and I want to be sure I do so in the best way possible for Willa. Any advice?
I attached a picture--one of my favorites because of her funny expression. ETA: I should say that this picture is a couple of months old (the latest ones are on my husband's computer) and I think the hemangioma has actually gotten bigger since then. If I can manage to get a pic of her tummy soon, I'll post that too.
Last edited by willasmama : 03-03-2011 at 06:22 PM.
Reason: clarification about photo