I'm having to restrain my poor baby :( - Vascular Birthmarks Foundation Forum
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Old 05-30-2011, 09:45 PM
twinmommy twinmommy is offline
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Join Date: Apr 2011
Posts: 32
Default I'm having to restrain my poor baby :(

Ruby's H. ulcerated and has gotten VERY large.

She has proven to be a relative of houdini, able to escape from ANY swaddle (and believe I've purchased every one on the market, muslin, cotton, you name it). In desperation I started googling baby restraints for surgery and found honey cuffs. I copied the idea and sewed her strips this morning with velcro, sherpa and clips.



Unfortunate for us this all happened on a holiday weekend, otherwise our specialist would have been in today and we would have demanded seeing him. He has not seen it since it has gotten this bad.

She started her beta blocker last Thursday... we haven't seen much change but then again her ulceration is so large it is hard to tell.

This has been a horrible week.
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