My son was born this May and he has a large PWS on his right leg. It extends from his butt to his ankle. He also seems to have a venous malformation on his knee that bled spontaneously last week... VERY scary for mom and dad. We've already been to see a pediatric dermatologist who took measurements and digital pictures. The plan is to "keep an eye on it" until he is old enough for sedation and imaging to determine if Klippel Trenaunay is indicated. Dr Conlon was the one who recommended this website, and I am glad he did. It's nice to see all the resources available no matter what we discover in an MRI.