Lower Lip Hemangioma - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 04-07-2011, 04:12 PM
Jenni Jenni is offline
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Hi, I am new to this website, my 2 week old daughter was just diagnosed with a lower lip hemangioma yesterday. I am trying to learn as much as I can. Our doctor is Dr. Drolet at Childern's Hospital in Wisconsin. Right now the H is just a red mark under her lip on the right side, but it extends down the inside of her lip. The doctor says that she will most likely require treatment and will possibly start with topical propanolol very soon. Does anyone have any experience with the topical propanolol verses the oral medication? Thanks.
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  #12  
Old 04-07-2011, 09:58 PM
missy missy is offline
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Hi and welcome!

There are a few parents here who are familiar with that. You might get more responses if you start a new thread... more parents will see it!

Missy
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  #13  
Old 06-12-2011, 06:18 PM
zsaZsa zsaZsa is offline
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hi . i know how you feel i have the same issue. and the question are so dumb i had some one ask me did she fall weren't you watching her , of course i was . it hurts to think people are not educated enough before they ask questions. i will send you picture of then and now . and to be honest I have a beautiful tale because of all this, i was afraid to breast feed was very careful with the bottle . i blame myself and my husband left me , i didnt have anyone to guide or help me except my family. my mother who catholic suggested a healing mass which i attended GOD help me i mean literally the next day the mark started to cover up with white patches it started to close and day by day it look better and better she just turn two and you can hardly see it . i also thank the doctors who also help they have written books on hermangioma and volunteer there services for the unfortunate . please email me if you have any other question im from long island , new york
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  #14  
Old 06-12-2011, 06:19 PM
zsaZsa zsaZsa is offline
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Quote:
Originally Posted by ahonerlaw22 View Post
Hi All,

I'm new here, been a lurker for awhile. My 7 1/2 month old daugther has a hemangioma on her lower lip. Luckily, it has not ulcerated or grown. We've seen a specialist at Childrens and they recommend the old "wait and see" approach. They said that Propranolol, Timolol, laser or steroid injection would not really work for her since her H has stabilized. They said surgical excision is the only real option and they don't want to do that because of scarring. So, basically, we've been told to "get through it" and "wait it out, it will eventually go away".

I guess I'm just frustrated. I know that her H isn't that bad but it is still on her mouth and very visible. Not a day goes by that someone doesn't ask what happened to her lip. Soo annoying.

I guess I just wanted to vent a bit. I've attached a pic of her H.

I have noticed though that it isn't as red and the borders seem "softer". Does that indicate involution may be starting?
hi . i know how you feel i have the same issue. and the question are so dumb i had some one ask me did she fall weren't you watching her , of course i was . it hurts to think people are not educated enough before they ask questions. i will send you picture of then and now . and to be honest I have a beautiful tale because of all this, i was afraid to breast feed was very careful with the bottle . i blame myself and my husband left me , i didnt have anyone to guide or help me except my family. my mother who catholic suggested a healing mass which i attended GOD help me i mean literally the next day the mark started to cover up with white patches it started to close and day by day it look better and better she just turn two and you can hardly see it . i also thank the doctors who also help they have written books on hermangioma and volunteer there services for the unfortunate . please email me if you have any other question im from long island , new york
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  #15  
Old 06-18-2011, 04:37 AM
Kdiperi Kdiperi is offline
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Ca I ask a question . My daughter just lower lip surgery for a debulk on her H and also a large scar removed from ulceration . It's now about 9 days later and the entire incision has ripped open ? The doctors are telling us that its common to happen. Have you experienced anything like this ?
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  #16  
Old 08-09-2011, 07:04 PM
HLA76 HLA76 is offline
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Hi!!

I was wondering what happened with your daughter's hemangioma?? My son has one on his upper lip and we've been doing steroid injections for the last 3 months and they have done nothing. We go back to our ped derm this week and she said we would start a different treatment. M

My main reason for this, my son's ped derm told us she wanted to shrink his H ASAP because of the skin on the lip. We were told that once it stretches, it doesn't bounce back as well. I would maybe get a secon opinion just to be sure. Follow your gut!!!

PS: She is gorgeous!!!
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  #17  
Old 09-13-2011, 07:52 PM
lizesmit lizesmit is offline
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Default Hi there, i have a 7 1/2 month old boy

Hi there, i have a 7 1/2 month old boy, he has the same size H on his lower lip as your daughter. I looked at when you posted this about your daughter, so now i am asking you, did it get smaller over the years, they are saying the same to us? wait and see.
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  #18  
Old 04-11-2014, 09:49 PM
Stowie14 Stowie14 is offline
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My daughter also has a H on her lower lip, although I'm thankful is it's not that noticeable as many others that I've seen, I'm wondering if it will ever disappear? She was 2 in January and it hasen't changed or anything. I was told it would go by the time she is 3. I don't want it to become a problem by getting bigger as she grow aswell but I don't want her to have surgery either unless she decides herself in years to come. Any information would be great as my doctor dosent obviously know much about them as I've heard they are rare x
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  #19  
Old 04-12-2014, 02:17 AM
smurph smurph is offline
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Hi there! Every hemangioma is different so it is hard to say. My daughter's upper lip hemangioma definitely started fading at around a year but was still definitely noticeable at age 3. She had surgery at age 5 and then a couple of laser treatments at age 6 and 8 to touch up the last bits. If she hadn't had those procedures I'm pretty sure she would still have a decent amount of hemangioma left but I guess I will never really know for certain. I've heard that sometimes lip hemangiomas don't always resolve as easily as hemagiomas in some other locations. If you haven't seen a specialist, it might not be a bad idea just to get more info and confirm that you are definitely dealing with a hemangioma since you have not seen any changes at all so far. You don't have to have surgery if you don't want to, but at least you can get the opinion of a doctor who specializes in them and then that might ease your worries or give you an idea of things to come.
Shannon
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