If your child has a PWS...
It's been a while since i posted. I have a 10 month old with a PWS on his right leg (from his hips/buttocks down to his toes). He was diagnosed back in July and the dermatologist wanted to start laser treatments. My husband and I decided to hold off for a while and wait and see what happens. So far I haven't really noticed any changes (yaaay!!) and we haven't been back to the "Vascular Anomolies Program."
I know every person is different, but I was wondering what changes other parents saw in their little ones' PWS over time. Of course I will continue to monitor it and take him back to the doctor if/when we notice any changes.
I hope everyone is in the holiday spirit! We are looking forward to our first Christmas as a family of four!