avm right soleus muscle - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

Reply
 
Thread Tools Display Modes
  #1  
Old 12-12-2011, 02:11 AM
rstern447 rstern447 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 3
Default avm right soleus muscle

my 19 year old son had his right soleus muscle removed due to a large avm with multiple feeds. This was done after he had multiple embolizations to decrease the risk of surgery. His surgery was successful and he is presently undergoing rehab. Has anyone had a similar situation and what have been the long term outcomes.
Reply With Quote
  #2  
Old 12-12-2011, 11:39 AM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,712
Default

Hi and welcome!

Honestly, I can't think of anyone who went through such a procedure. I'm not sure you're going to find many people to answer you ... Hope I'm wrong!

I'm going to move this to the avm forum, so that it has its own topic there, rather than being under someone's post.

Missy
Reply With Quote
  #3  
Old 04-11-2012, 03:29 AM
ashley339 ashley339 is offline
Junior Member
 
Join Date: Apr 2012
Posts: 1
Default

I'm 22 and had a similar procedure done in December- 60% of my gastroc was removed from my right calf because of a vascular anomaly. Unfortunately I'm not sure of the long term outcomes, but I have been noticing an improvement as times goes on. I have not undergone therapy for it but will probably start soon- I'm currently looking for exercises to help regain strength in my leg and any tips would be great!
Reply With Quote
  #4  
Old 04-14-2012, 04:07 AM
Jtest123 Jtest123 is offline
Junior Member
 
Join Date: Feb 2012
Posts: 5
Default

rstern447, it's been 4 months since your post. I'm wondering if your son has shown good recovery?

ashley339, my understanding is that the gastro muscles are not so critical and are often removed in calf reduction surgeries (ie cosmetic reasons!).

p/s My son's (14 this year) avm involved all 3 calf muscles: peroneus, soleus and gactrocnemius so surgery is out for now. But curious all the same.

Thanks.

Julia
Reply With Quote
  #5  
Old 05-12-2012, 05:30 PM
rstern447 rstern447 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 3
Default update

Hello, I was the one who wrote about my sons surgery on Nov 25th 2011 on his soleus muscle. It is today May 12th 2012. My son has done very well after his surgery although his scar from mid thigh to achilles tendon is still very visable. He went back to college on Jan 7th and finished the semester a few days ago. He can jog 3-4 miles per hour and walks entirely normally. His goal is to have the other leg muscles take over for his soleus muscle. For those of you who have loved ones who have severe avms there is a very successful procedure that is offered at only a few scattered institutions called embolizations. My son had approx 15 blood vessels treated with this procedure...it was very very intensive and nervewracking however it was VERY successful thank god. He was treated for these procedures at one hospital and transferred to another hospital where he had his 5 hr surgery to remove his soleus muscle..If there is anyone who has had similar experience or who can give me some long term information on future expectations or reoccurence of avms I would appreciate it. If anyone needs more information from me please contact me through this forum. By the way just for thorougness I am a physician.
Reply With Quote
  #6  
Old 05-14-2012, 05:29 AM
Jtest123 Jtest123 is offline
Junior Member
 
Join Date: Feb 2012
Posts: 5
Default

Hi rstern447, thanks for the update and it's heartening to hear of your son's success!
Reply With Quote
  #7  
Old 11-17-2012, 09:19 PM
rstern447 rstern447 is offline
Junior Member
 
Join Date: Dec 2011
Posts: 3
Default

Just want to leave an update..My son had his entire soleus muscle removed one year ago. He is doing very well/walking and able to run,although cannot run very fast. The surgeon we had did a remarkable job and we are very pleased with the outcome. We don't know what the future will hold. He has had 2 MRIs done this year which were entirely normal. His surgeon was a hand/leg vascular surgeon at NYU medical center in NYC (he does not accept insurances)

Last edited by rstern447 : 11-17-2012 at 09:21 PM.
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump