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  #1  
Old 12-05-2011, 01:12 PM
sus1215 sus1215 is offline
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Default Worried...need advice

I'm 31 weeks pregnant with my second child and have had several ultrasounds so far. Everything looks wonderful as far as the development goes, but at my last ultrasound the doctor noticed a small mass on the baby's abdomen, close to the unbilical cord and thinks it's an hemagioma. I wasn't aware these could be detected in utero...is this possible? He scared the heck out of me when he told me "I don't think you will want to terminate because of this" which makes me think there is more to this than an hemangioma. We have an appt with a pedicatric surgeon next week to review the ultrasound and see what they think. I asked my OB about this and she said not to worry, that that particular doctor is "an alarmist" and is like that most of the time and cannot understand why he's use the word "terminate." She assured me not to worry and that seeing the surgeon is a precaution in case the hemangioma would need to be removed. I have read a lot of htis topic and see most hemangioma's on on the face or nexk area. COuld my baby's mass be something else? My other concern is if it is a hemangioma, it seems most fade and many don't opt to get it removed, so why the visit to a surgeon? I'm worried sick and crying all the time over this. It sure isn't good for my pregnancy. Can anyone give me some insight?
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Old 12-05-2011, 09:51 PM
smurph smurph is offline
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I'm so sorry..that must be so hard to be worried about this and have to wait to find out more info.

I am certainly not an expert, but there are different types of hemangiomas. My daughters (and most of the people I run into here) have infantile hemangiomas which are not really visible at birth but then shortly after start to grow for about a year. Then they start to go away. But there are other kinds... called RICH and NICH, I believe, which is a Rapidly Involuting Congenital Hemangioma and Non-involuting Congenital Hemangiomas...I don't know that much about them, but I think they are present at birth and I think may be detectable by ultrasound. As far as treatment goes, I think it depends on what type you are dealing with. Could you consult with a Vascular Anomaly Specialist? ...I'm not sure where you live, but there are some suggestions on this site. That might help to put your mind at ease. Then they could monitor it closely for you. I don't think you need to be too worried. Good luck! Maybe someone else will come on here who has had a similar experience. Keep us posted! Hang in there!
Shannon
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Old 12-06-2011, 12:02 PM
missy missy is offline
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Hi and welcome!

Everything Shannon said is spot on. Also, write to one of our experts at
http://birthmark.org/experts.php and they will answer you pretty promptly.

Missy
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Old 12-08-2011, 11:03 PM
nickbar nickbar is offline
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I would go with what your OB said. Sounds a bit out of line how the other doctor spoke. Yes, hemangiomas can be present in utero like Shannon mentioned. I am not sure why they would have you see a surgeon now. I would suggest consulting with a specialist. How far a long are you?
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Old 12-12-2011, 08:21 PM
sus1215 sus1215 is offline
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I'm 32 weeks and just saw the surgeon today to cover bases IN CASE our baby girl will need her hemangioma removed. He assured me that he sees this frequently and the doctor was out of line to say such things to me. I feel much better about the situation now and at least we have a game plan should she need surgery and we won't be shocked to see the hemagioma when she is delivered. And better to be on the abdomen than face. It could be worse, right? Thanks for the feedback.
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Old 12-13-2011, 12:51 AM
missy missy is offline
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Oh! I'm glad you feel better. I do think that one doctor was an alarmist ... not what you need right now. You must be due in February? Keep us up to date and let us know what happens. Please come back with more questions or concerns.

Missy
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Old 12-20-2011, 06:57 PM
nickbar nickbar is offline
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Yes, please keep us posted on how you are doing. Sounds like the surgeon you found will take good care of your baby if needed.
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