Multiple hemangiomas

Krystlem · #1 01-09-2012, 03:54 AM

Hi everyone, I am so glad that I found this site. My daughter was born with one hemangioma on the side of her head. It was flat at the time so I just assumed it was a normal birthmark. As it got a little bigger, I did some research and found out what it was called but read that most go away on their own so I wasn't concerned. More began showing up and she currently has 5, one on the head, one on either side of her neck and one on both sides of her torso. I showed them all to the doctor at her 2 month appointment and she didn't show any concern, just told me what I had already read about them growing and then fading away. She did give me the number for a dermatologist but said that they generally do not do treatments unless the eyes, nose or mouth are involved. At the time I felt reassured and did not make an appointment with the dermatologist.

I started doing some more research last night and completely changed my opinion. I wish I had done it sooner as her 4 month checkup was a few days ago and she in not scheduled to go back for two months. I did not know about the possibility of internal hemangiomas, especially when you have multiple external ones. Reading about some of the possibilities is scary! I plan on calling the dermatologist tomorrow to make an appointment but I was just looking for other people who have had children with multiple hemangiomas for more information as well as what to expect.

missy · #2 01-09-2012, 12:16 PM

Hi and welcome!

How old is your daughter now? More than 4 months, less than 6 months? LOL I guess that would be about five, wouldn't it? I'll have to take off my shoes and count that up!

My concern at this point would be monitoring them, especially if they are small. However, I'd like to see you be able to see a specialist, someone who knows how to deal with birthmarks should they grow rapidly or ulcerate. Where are you located? We might be able to help you get a referral to a good specialist.

Missy

Krystlem · #3 01-09-2012, 06:30 PM

My daughter is 4 months and one week now. I made an appointment for next tuesday with the chief of dermatology at Genesys health park in Grand Blanc, Mi. I would like for her to have an ultrasound to check for internal hemangiomas as the ones she has externally have either stopped growing or slowed down. She has one on her head, one on either side of her neck, one on her right side under her armpit and one on her left side.

Krystlem · #4 01-09-2012, 06:31 PM

Had to add a second post since it limited me to 4 images.

nickbar · #5 01-10-2012, 03:19 AM

Hello,

Have you noticed any issues with breathing, eating, digesting, hitting milestones?
I would encourage you to have her evaluated by a specialist just to make sure all is ok. Internal lesions are very rare and you would likely see symptoms of any that are of concern. Please feel free to write to me if you need help getting a specialist.

Krystlem · #6 01-10-2012, 09:46 PM

The only issues she has had so far is spitting up but we have switched her formula a few times and now she is on Similac sensitive for spit up. She is doing much better on this and gaining weight as expected.

My only concern is that she could have complications down the road if internal ones are present. I feel more comfortable having it checked now than waiting it out.