Johns Hopkins and h treatment - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 12-22-2011, 01:13 AM
Jennawjxx Jennawjxx is offline
Junior Member
 
Join Date: Dec 2011
Posts: 3
Default Johns Hopkins and h treatment

My son has a nasal tip h. My pedi consulted a doc at johns Hopkins who recommended treatment with propanol. Is johns Hopkins fairly well respected in their treatment of h?
Reply With Quote
  #2  
Old 12-22-2011, 04:05 AM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,729
Default

Hi and welcome,

I've never heard anything bad about John Hopkins and their treatment of birthmarks. Also, that is an appropriate treatment option.

Others will chime in soon, too. But come back if you have any more questions or if VBF can help in any way.

Missy
Reply With Quote
  #3  
Old 12-23-2011, 03:12 AM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default

Hello, Propranolol is being used very often lately to treat hemangiomas. Specifically to treating hemangiomas at JH I am not sure; however, one of well respected experts is associated with Johns Hopkins related to syndromes related to vascular malformations.
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #4  
Old 02-02-2012, 02:34 PM
beef5stew beef5stew is offline
Junior Member
 
Join Date: Jan 2010
Posts: 11
Default

My wife and I had our daughter treated at hopkins for a Hemangioma on her neck. The head of Pediatric Dermatology was great. She took pictures as she write a book on hemangiomas for other doctors (I think her name was Dr. Putkin). She was great with our daughter, put us on Propanolol and put us in the hospital overnight the first night just to be sure there wasn't any negative reactions to the drug.

We were happy with the results, and have a follow up with a plastic surgery consult about a possible removal (Daughter is 30 months)
Reply With Quote
  #5  
Old 02-23-2012, 02:00 AM
ruthless009 ruthless009 is offline
Junior Member
 
Join Date: Feb 2012
Posts: 16
Default

propanol is the first step of many to trying to resolve them, they work on some not on others
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump