Best Doc for Orbital Lymphangioma - Vascular Birthmarks Foundation Forum
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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

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  #1  
Old 05-25-2012, 01:49 AM
kstar kstar is offline
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Join Date: May 2012
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Default Best Doc for Orbital Lymphangioma

I am a newbie here. I am 43 years old with left orbital lymphangioma diagnosed at birth. I have had 28 surgeries as a child in NYC. I have been stable for 17 years, but now the tumor is active. I am looking for any advice on who the top docs are these days. I live in MA, but am willing to travel.
Thanks,
Kstar
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  #2  
Old 05-25-2012, 12:05 PM
missy missy is offline
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Hi and welcome!

Go to http://birthmark.org/experts.php and look for Aaron Fay. Write to him and see if he can either help you or direct you.

Missy
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  #3  
Old 06-06-2012, 06:46 PM
SJudd SJudd is offline
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Default Nationwide in Ohio

I highly recommend Dr. Shiels at Nationwide Children's hospital in Ohio. Even though you are an adult, this is considered a pediatric condition, so it can be treated there. He and his staff have a wonderful new procedure that can be done on an outpatient basis. This article is his:

http://birthmark.org/pdf/LymphaticMa...nTreatment.pdf

Contact information: http://www.nationwidechildrens.org/william-e-shiels
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  #4  
Old 06-19-2012, 03:08 AM
jmills jmills is offline
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I too highly recommend Dr. Shiels. He is my daughters Dr.
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