9 year old with deep hemangioma of forearm....new treatment options? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment.
Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 11-27-2012, 05:15 PM
danielle6315 danielle6315 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 4
Default 9 year old with deep hemangioma of forearm....new treatment options?

my 9 year old daughter has deep hemangioma on left forearm from wrist to elbow. when she was between 1-4 years old she had multiple pulse dye laser treatments that successfully removed the deep red coloration, it is now her skin tone in color with bluish undertones. we were told as she gets older will involute. she's 9 and no sign of involution, arm is still if not as of recently, very puffy in appearance, swollen. recently complaints of ot feeling sore and some deeper blue coloration appearing. we have appointment next month again but curious if any one has older kids with this and if so, what treatment at this point.
Reply With Quote
  #2  
Old 11-29-2012, 01:09 AM
smurph smurph is offline
Senior Member
 
Join Date: Jan 2007
Posts: 400
Default

I'm thinking that she doesn't actually have a hemangioma. Usually those begin involuting around the age of one. Have you been seeing a specialist all this time or has it been a long time since you have been for an appt. ?
I would definitely see someone who knows something about other birthmarks/malformations to make sure the diagnosis is accurate and then maybe they will have some other ideas for treatment options since they vary for different types of birthmarks. Good luck! Keep us posted!
Shannon
Reply With Quote
  #3  
Old 12-01-2012, 02:58 PM
danielle6315 danielle6315 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 4
Default

she hasn't been to dr. Warner since 2007, that was the last of her 4 laser treatments, he said to wait and see the involution process. but your right im thinking it may be a vascular malformation. we have appointment with dr. Rosen this month and im hoping he has some insight for us,
Reply With Quote
  #4  
Old 12-01-2012, 09:43 PM
smurph smurph is offline
Senior Member
 
Join Date: Jan 2007
Posts: 400
Default

I hope you get some answers. I bet he will be very helpful. Keep us posted!
Shannon
Reply With Quote
  #5  
Old 12-15-2012, 07:50 PM
danielle6315 danielle6315 is offline
Junior Member
 
Join Date: Nov 2012
Posts: 4
Default

We had seen dr. Rosen yesterday. Kate has a vascular malformation of left forearm that was interestingly covered with a henangioma and appears to be both venous and lymphatic. In process of getting MRI w contrast to determine treatment plan but he is confident of treatment
Reply With Quote
  #6  
Old 02-26-2013, 02:41 PM
archamsm archamsm is offline
Junior Member
 
Join Date: Feb 2013
Posts: 2
Default curious

Hi! I'm a newbie here. First time posting. My daughter is 2 1/2 and was diagnosed with a hemangioma on her lip and nose shortly after birth. We were seen at Cincinnati Childrens hospital where we started proprananol at 3 months. She was weaned off proprananol around 18 months and had surgery at 2 years as the hemangioma appeared to have some regrowth. The hemangioma was successfully removed from her lip and laser was done for discoloration under her nose. 6 months later the area abover her lip remains swollen and has purple/bluish undertones under the skin that are noticeable. We were told early on that they believed she presented with both a deep and superficial hemangioma, but that wasn't an absolute. I am wondering now if something more is going on and how to proceed with further treatment. Some days the area above her lip appears more swollen than others. I'm curious about your childs diagnosis with vascular malformation that was covered up with a hemangioma. How was this diagnosed and how are you treating it. Any adivce or helpful leads would be greatly appreciated. stacy

Quote:
Originally Posted by danielle6315 View Post
she hasn't been to dr. Warner since 2007, that was the last of her 4 laser treatments, he said to wait and see the involution process. but your right im thinking it may be a vascular malformation. we have appointment with dr. Rosen this month and im hoping he has some insight for us,
Reply With Quote
  #7  
Old 02-26-2013, 10:54 PM
smurph smurph is offline
Senior Member
 
Join Date: Jan 2007
Posts: 400
Default

danielle6315-
Wow! That's crazy! I've never heard of that before. I'm glad that your appt. was productive and that you are on your way to a plan! Thanks for updating!
Shannon
__________________
VBF Hemangioma Forum Moderator
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump