Boston childrens hospital - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #1  
Old 12-22-2012, 09:15 PM
lf lf is offline
Junior Member
 
Join Date: Dec 2012
Posts: 12
Default Boston childrens hospital

Any one have experience with teh VAC at Boston Children's Hospital?
Reply With Quote
  #2  
Old 12-24-2012, 02:45 PM
smurph smurph is online now
Senior Member
 
Join Date: Jan 2007
Posts: 413
Default

Yes, my daughter saw Mr. Mulliken there and he did her surgery too. He did a great job. She also had laser done by another doctor there who was also great. Her laser was done at the Lexington site. My cousin's son saw the whole team of doctors at the VAC for a very rare birthmark and he got excellent care. So we have had a good experience here. Let me know if you have any questions.
Shnannon
Reply With Quote
  #3  
Old 12-24-2012, 07:14 PM
lf lf is offline
Junior Member
 
Join Date: Dec 2012
Posts: 12
Default

Great! Thank you. I contacted them last week and we are seeing a NP on Wednesday. My daughter has a small H on her forehead. It started as an light pink outline and at 5 weeks turned slightly red and has filled in since then. It is still small, it hasb't gotten much bigger than the orginal outline. It grew fast from 5-7 weeks and then it slowed down the 2 past weeks (she is nine weeks old),
Reply With Quote
  #4  
Old 12-26-2012, 03:05 AM
smurph smurph is online now
Senior Member
 
Join Date: Jan 2007
Posts: 413
Default

If it seems to be slowing down maybe that's a good sign? We always had a good experience there although there was sometimes a long wait, so you might want to be prepared for that. My daughter wrote a picture book about her hemangioma when she was 5 and she gave them a copy. They may have it in the waiting room??? I'm not sure? It's called "Faith's Birthmark." She thinks she's a famous author. (She's 7 now.) We live in NH. Where are you from? Good luck with your appt. Out of my 4 daughters, 2 had significant hemangiomas. One had a little one. Faith had one on her lip and it required treatment-steroids, surgery and laser. My other daughter had a big one on her hand/wrist and she had no treatment at all and it went away on it's own. It's so weird. Good luck with everything! Is it tomorrow? Keep us posted.

Shannon
Reply With Quote
  #5  
Old 12-28-2012, 04:04 PM
lf lf is offline
Junior Member
 
Join Date: Dec 2012
Posts: 12
Default

My other daughter goes there for another reason often so I am very familar with the process. This experience was really good. they took us early!! The NP was wonderful. She is confident that the H has done most of its growing and would not get much larger. It is slmaller than a dime. She answered all my questions and took time to really make me feel comfortable. We decided to try timitol to see if that helps. After a couple of days the H is already softer and smoother so I am excited to see what happens in the next few weeks.
Reply With Quote
  #6  
Old 12-28-2012, 04:06 PM
lf lf is offline
Junior Member
 
Join Date: Dec 2012
Posts: 12
Default

I did not see the book but we were not in the waiting room for long. I llive in the worcesterr area.
Reply With Quote
  #7  
Old 12-30-2012, 01:22 AM
smurph smurph is online now
Senior Member
 
Join Date: Jan 2007
Posts: 413
Default

So glad it went well for you!
Shannon
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump