Timonol - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  

1994 - 2014 Celebrating 20 years with 75,000 networked into treatment, over 3,000,000 views monthly on our world wide websites, virtual chapters on 6 of the 7 continents in the world, 500 families provided free lodging while seeking a medical opinion or treatment,over 400 conference scholarships awarded, 200 Day of Awareness events, 15 conferences, 12 programs (including our Ask/Accept Anti Bullying Program),10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 3 Galas, and 2 International Missions Trips with over 300 treated by our international team.
Donate to VBF

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-05-2013, 12:41 PM
lf lf is offline
Junior Member
Join Date: Dec 2012
Posts: 11
Default Timonol

My 5 week old daughter had a H that was growing very fast. It is a comboined deep and surfical. At 5 weeks it was barely there, at 9 weeks it grew to almost a dime. I brought her to her pedi who said wait and see and I asked to go to as derm because I didn't like this answer. they couldn't tell me anything, how big it would get just that it would eventually stop growing and shrinking. I went and saw the derm and said the same thing. I was not happy with these answers so I went ahead and made an appointment with Boston childrens hospital at the end of December. They presecribed Timonol. The H stopped growing immediately! 7 weeks later it is slightly smaller, less red, less raised and you can see graying in the middle. It doesn't do anything for the deep, that seems to be the same also. I am so happy that I chose to this route!
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump