successful propranolol treatment! - Page 2 - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Help and Resources for Hemangiomas

Reply
 
Thread Tools Display Modes
  #11  
Old 03-23-2010, 01:02 PM
momof3inpa2009 momof3inpa2009 is offline
Senior Member
 
Join Date: Dec 2009
Location: PA USA
Posts: 112
Default

mumof2--same thing here....when others see our daughter's "bumpy" (as we call it) they say they see a huge difference but some days we don't see it. I also feel as though the results are a bit slow. Like at first it seem fast and dramatic but now it's a bit slower process.
Reply With Quote
  #12  
Old 06-15-2010, 01:31 PM
dr.satish kumar dr.satish kumar is offline
Junior Member
 
Join Date: Jun 2010
Posts: 1
Question Portwine stains in adults

Has any one heard of effects of Proponolol on adults with portwine stains?
Reply With Quote
  #13  
Old 06-15-2010, 02:34 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,711
Default

I have never heard of it being used for port wine stains at all, only hemangioma.

Missy
Reply With Quote
  #14  
Old 03-13-2013, 12:35 PM
tyler12 tyler12 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 1
Default Birthmark

Hi there i am new to this site so not sure how it works but anyway i am 31 and i have a risen hemangioma which is covering my face anyway when i wa born and the doctors finally realized what i had it was grown quite a bit by then an i have had lots of surgery over the years and stopped when i was 13. But i had never heard of propranolol but i am wondering if it may work on me now at my age and obviously because mine is fully grown and to be honest i don't know what to do from here. I know some people may so just live with it but hey it's easy for people to say, Also i have asked for skin graft but i was refused by my old surgeon as of all the risks so i'm now on plan B, Anyway if anyone could please answer and give me some kid of advice then that would be great also can you see your doctor for propranolol or would i need hospital visits.
Reply With Quote
  #15  
Old 03-13-2013, 01:48 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,711
Default

Hi and welcome!

Hemangioma is a term that refers to a birthmark that only babies have. They resolve in some way or other by puberty.

If you have a vascular birthmark as an adult, it is either a port wine stain or vascular malformation, but not hemangioma.

Many doctors still use the terms interchangeably, but they are not the same thing.

That medication would not work for a vascular malformation, though it does work in some children for hemangioma. There is no evidence that it would work for you, though, and I don't think any physician would prescribe it.

Where are you located? Perhaps you could see a specialist that does have experience with vascular malformations in adults.

Missy
Reply With Quote
  #16  
Old 12-18-2013, 12:23 PM
That little boy That little boy is offline
Junior Member
 
Join Date: Dec 2013
Posts: 1
Default I was born with it on my Tongue

Quote:
Originally Posted by Dawn and Baby Presley View Post
WOW we are on the Propranolol treatment as well...where do you live?
We are in New Brunswick Canada, and there are only two patients in the whole province on it us and one other little boy!
I mentioned it back a month ago on this site hoping also to help someone!!
Congrats!
Dawn
Hi i am now 46 years old and honestly nothing was ever seen like it here in New Brunswick. Dr Tan had sent me for numerous categorizations to try and stop the cycle of constant retains blood and swelling. I lived well into my teens with it and then it got to the point where it was either going to go to the tip of my tongue and dissapear or down my throat into my organs luckily I am still here.
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
How to consider treatment options ttn Help and Resources for Hemangiomas 3 05-02-2009 01:50 AM
Johns Hopkins Using Propranolol as First Line Treatment megs1082 Help and Resources for Hemangiomas 0 03-04-2009 04:50 PM
Sun exposure after laser treatment momofAddie Port Wine Stain Help and Resources 5 06-23-2008 01:09 AM
f/u from my hubby's first treatment and 2nd treatment beth216 Port Wine Stain Help and Resources 2 07-13-2006 01:55 AM
Exercise effect Laser treatment? Tone Port Wine Stain Help and Resources 2 09-09-2005 02:04 PM