Hi Shannon! We are headed to Cali in October! I heard back from Basia Joyce last evening and am filling out the registration form now. I honestly cannot thank you enough for giving me that info. I want you and the VBF team to know what a huge positive impact this tiny bit of hope is already giving us. We are beyond excited to finally be heading in the right direction and to be receiving sound advice! I am extremely grateful for this opportunity!
Hello Tanya! Glad you are coming to the conference. It is a great way to get to see the top specialists in the field all in the same place! My son was originally treated in Portland by Dr. Krol @ OHSU. Have you had a chance to see him? Feel free to email me directly if you would like to share stories and I might possibly have some advice.
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
I have been thinking of you this weekend and hoping that you were still able to make the trip to the conference in California. I hope it is a good experience and that you are able to get some more information. Let us know how it went!!! Have a safe trip!
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.
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