Hello, We live in London and our 2.5 year old son also has a microcystic lymphangioma of the upper lip that's under the skin - looks like a lump. I would appreciate to get in touch with parents to find out about possible treatments. We are currently under GOSH..but keep waiting for a decision to be made - sclerotherapy or surgery..sclerotherapy is not very successful with microcystic lymphangiomas..recently the lump is bruised and my son seems to be in pain...especially at night..i don't know what to do..I would love to get in touch with people with similar problems to find out more. Thanks
Last edited by mundo.kot : 10-13-2013 at 07:39 AM.
Is this still an active thread? My son is 14. Had microcystic lymphangioma of upper lip debulked at age 2. Frustrated with increasing bouts of swelling and ulceration but I don't think additional surgery is the right option. Would like to discuss with others and connect with anyone dealing with similar malformation here in Ontario.
I've not been on here for a while sorry, last year my daughter had 4 treatments of bleomycin injections in her lip. The results were fantastic. The swelling of her lip has gone down a lot. She no longer gets flair ups, ulcerations, or infections.
Her lm is microcystic.
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