PWS, Seattle area
I am a mother of a 2-weeks old baby Kate with a port wine stain covering her right part of her scalp, forehead, eyelid, neck and temple. We have just started looking for treatment options, and of course this all is so overwhelming in the beginning. We would love to connect with parents of kids with PWS for support and to share experience of treating PWS in WA. Please drop me a message if you would like to do so too.