Question about PWS - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Reply
 
Thread Tools Display Modes
  #1  
Old 06-27-2014, 01:14 PM
Dknight Dknight is offline
Junior Member
 
Join Date: Jun 2014
Posts: 1
Default Question about PWS

I have a question that I wonder if anyone has any feedback and want to make sure I am asking the correct questions of the doctor.

My 6 year old daughter has a PWS on the lower left part of her face including some of her neck and ear. She has had no other issues since birth associated with the PWS. We see a fantastic pediatric dermatologist at our local children's hospital and the pulse dye laser has work beautifully on her. Now that the background is out of the way she is currently being worked up by her pediatrician for blood in her urine. She does not have an infection and all of her labs have came back normal. She had a renal ultrasound on Wednesday and we got the results back today. She was clear for kidney stones, but both kidneys are enlarged and dilated, she also has a cyst in her right kidney. We are seeing a nephrologist on Monday for further testing and evaluation. My question is could this be related to the PWS? Is there anything specific I should be asking the doctor to help rule that out or to rule it in? I don't think it is related, but I just want to be sure. I don't want to be the panicky pushy mom but I do want to be well informed and ask the best questions I can to get her treated properly.
Thanks !!

Deena
Reply With Quote
  #2  
Old 06-27-2014, 08:27 PM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,724
Default

Hi and welcome!

I wouldn't know if the two things are related, but if your physician thinks so, be sure to ask for additional resources for information. But I can't think of even another parent that has had a similar problem.

Let us know what happens tomorrow!

Missy
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump