3 year old with VM in the leg
Hi we have recently figured out through MRI that our 3 year old daughter has a Venous Malformation in her right lower leg, extending from just below the knee to just above the ankle. (Its pretty extensive and wraps around muscle and tendons) Probably about once a week she wakes up in the night crying with pain and limping from it. We have recently seen Dr. John at Sick Kids in Toronto, Canada and we have booked sclerotherapy, the first one for the end of this month. I now have second thoughts on doing the sclerotherapy. Does any one have experience with this with a child this young?? How was recovery? How painful was it after the procedure and for how long?? Does anyone have personal experience with Dr. John performing the sclerotherapy?? I'm just really scared of the risks.... I know they have to read them to you even if they rarely happen but its really scary! Our daughter has full function of her leg and muscles and we don't want to mess with that. Please if anyone can help out with any info that would be really appreciated, we are still very new to this diagnosis!