tv coverage!! - Vascular Birthmarks Foundation Forum

tv coverage!! - Vascular Birthmarks Foundation Forum

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tv coverage!!

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#1

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05-05-2004, 08:21 PM

eprmo

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Join Date: Dec 2003

Posts: 149

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tv coverage!!

We are on tv for Nat'l Awareness Day!!!

A teen is in the hospital now with SWS/PWS, and he is going to be interviewd by our local tv station which is a CBS affiliate!!!

They are taping this Tues.

Elissa

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Elissa Rifkin
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#2

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05-05-2004, 08:29 PM

Lise

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Re:tv coverage!!

Good work, Elissa!! I'm glad they will talk about SWS, it is often a rather severe syndrome, it needs more researching and awareness.

Lise

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