I grew up with a PWS on my face, and it never botherd me one bit. I can't imagine not having it! I love it, and I think it had a big impact on the person I am today and on the way I look at other people. I wouldn't remove it even if it was free.
I never had any surgeries for it. It was never touched by a doctor and I never had any problems with it. I know that when I was younger doctors monitored if it's spreading or growing, but they never did anything about it. For that I'm grateful, because I can feel very special today just because I have one!