TearJerker, read with caution please seriously - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Twins With Birthmarks

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #1  
Old 03-21-2005, 02:51 AM
songstressdiva1
 
Posts: n/a
Default TearJerker, read with caution please seriously

Ok heres a long story - I found this website just tonite, I am a huge fan of Clay Aiken and I see on Clayreport where he's donated things for your fundraiser - and I wonder if this is what my daughter had - so heres my story,* 18 years ago I gave birth to my 4th and 5th child, a boy and girl set of twins, my daughter Jodi had a birthmark on her backside cheek, the doctors all said its just a birthmark, it was red and raised off her skin and covered a great deal of her cheek and went far enough up so that you could see it out her diaper a little.* When she was about 3 weeks old she started bleeding from her birthmark, I took her to the doctor immediately, he told me he really had no idea why this was happening to her and decided to do a baenima exray the next morning, imagine not being able to feed a 3 week old child from midnite till the test was done, not fun.* The test didn;t reveal anything so he said just to keep a close eye on her.* A while after that open sore blisters were growing on her birthmark, I took her back to the doctor right away, he again said he didn;t have any idea so we went to a dermotologist who said it was rare but* nothing to worry about.* He gave me Silvadine and some other type of liquid medicine to put on her, while the original sores were healing you could still see through the thin layer of skin and others were still forming, our next visit to the doctor he told me she was doing great, I was a great mom, keep doing what I was doing and he would see us in 2 weeks.* Before that 2 weeks came her birthmark turned completely black, rushed her to the hospital immediately.* They worked on her at our local hospital for about 5 hours and then put her in life flight to go to Atlanta Egelstons childrens hospital, theres another part of the story on how we got lost and they took her to another hospital and so on but thats not really important, anyway she died in the helicopter before she ever made it to the hospital.* I know its been 18 years ago but she never* leaves my mind and I need to know could this have been what she died of?*Her twin brother Jeffrey is a very handsome 18 year old young man. I still need answers - any help would be appreciated - thank you
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Your stories guide lines. Please read before posting in this section!! Thank You hankbartenbach Living with a birthmark - my story 6 06-25-2013 02:56 PM
Please Read & Reply David Varadanyan Help and Resources for Hemangiomas 1 03-30-2009 09:10 PM