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  #1  
Old 04-06-2005, 09:02 PM
KristieinStMarysGA KristieinStMarysGA is offline
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Join Date: Feb 2005
Location: St Marys GA
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Default blood clots???

are blood clots common with vm's? if so what are some signs/symptoms? I have a few hard lumps that I know have come about the last day or so...hurts when I move my wrist up/down left/right they are on the forearm...

thanks
kristie
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Old 04-07-2005, 08:07 PM
jose jose is offline
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Join Date: Apr 2005
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Default Re: blood clots???

Hi Kristie,

Our group manager on the vbf support group site notified us of your post and asked someone with experience with blood clots to respond. This is my first time on this site.

My son is 9 and has multiple VMs in his neck/throat/shoulder area, on the right hand side only. He has suffered from repeated blood clots the last 2 years. He just started sclerotherapy treatments at the Hospital for Sick Children in Toronto, Canada...he had his first treatment last week. It is hoped that the sclero will wipe out the VMs and the clots and resultant scar tissue (phleboliths...hard little nodules that the clots usually leave behind in the VM, which can also be very tender to the touch).

Clots are certainly not unheard of with VMs. With my son they usually present themselves as a hard, raised blue lump which hurt a lot to the touch. A couple of months ago we thought he had broken his collar bone due to a hard lump on it which totally impeded his motion in his arm...turned out his collar bone was fine, but he had a clot in that area! He ended up going on aspirin therapy (again) 1 adult aspirin, 2x a day and tapering off until it was gone. Unfortunately that can cause bruising issues AND it upsets his stomach!

Hope everything works out for you!! Let me know if there is anything I can help with.

Take care,

Jose
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  #3  
Old 04-07-2005, 08:12 PM
nickbar nickbar is offline
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Default Re: blood clots???

thank you Jose!

THe group she is referring to is on msn VB Support Group

here is the link if you are interested in cking us out.

Corinne
http://groups.msn.com/vascularbirthm..._whatsnew.msnw
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