capillary malformation with overgrowth, anyone?
My infant has been diagnosed with capillary malformation (pws) with overgrowth. His pws covers both hands, arms and it continues across his chest. Does anybody have a similar condition? From what I've gathered, this is a wait-and-see type of condition. He has mild soft tissue overgrowth now, with no obvious bony involvement. I love him to pieces and we are currently receiving laser treatment, but I'm sooo concerned about the overgrowth and possible involvemnt of his veins, lymph etc. Any help will be a huge comfort!