capillary malformation with overgrowth, anyone? - Vascular Birthmarks Foundation Forum
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Old 04-24-2005, 12:56 AM
lauradkirk
 
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Default capillary malformation with overgrowth, anyone?

My infant has been diagnosed with capillary malformation (pws) with overgrowth. His pws covers both hands, arms and it continues across his chest. Does anybody have a similar condition? From what I've gathered, this is a wait-and-see type of condition. He has mild soft tissue overgrowth now, with no obvious bony involvement. I love him to pieces and we are currently receiving laser treatment, but I'm sooo concerned about the overgrowth and possible involvemnt of his veins, lymph etc. Any help will be a huge comfort!
Nic's mom
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Old 04-24-2005, 02:00 AM
Jin9084
 
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Default Re: capillary malformation with overgrowth, anyone?

Hi and welcome to the group. My son has a facial pws and sturge-weber syndrome. Who does your son's laser treatments? Have you been to any other specialist? You are doing the right thing by starting laser treatments.
Hugs,
Jinny
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