Lymphangioma - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
  #11  
Old 06-27-2005, 09:29 PM
Bearsmom
 
Posts: n/a
Default Re: Lymphangioma

Hello again,
Just want to add that I do not beleive Ok-432 (Picibanil) injection is for everyone, or that everyone should try it, It is a decision that should be made by everyone involved. With a dr you trust. For our family it was the right time to try it. Iowa study does exclude many, but help a lot. More research is needed in this county, OK-432 was start in Japan. A very smart man, who I am very sad to say died in 2003 at the age of 55. My child is very lucky her cyst is minor compare to many. But hope is on it's way. Iowa research was just started in 2000. It may not be a cure but at least there is hope out there. When we were first told that Tessa had LM we could not find support groups or research papers with much info. Today there is at least two group for just LM (cystic hygroma), not to forget about this one. Thank you so much for listening LOra
Reply With Quote
 


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Looking for lymphangioma or hemangiolymphangioma specialists and treatment Jeanette Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 20 09-23-2012 01:58 PM
lymphangioma in the pelvic sarfati Lymphatic Malformations (also known as cystic hygroma and lymphangioma) 4 02-06-2009 07:13 PM
Poss VM or Lymphangioma - any relation to trauma?? mom2three AVM Help and Resources 3 07-09-2008 10:52 PM
Systic Lymphangioma here! Vegeton Youth and Teen Support 2 06-22-2006 04:23 AM
New to the board...23/male with lymphangioma of the right orbit filmguy AVM Help and Resources 2 02-18-2004 11:42 PM