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  #11  
Old 07-25-2005, 08:30 PM
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swsc swsc is offline
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Join Date: Feb 2004
Posts: 81
Default Re: HELP! I need advice ASAP!

Hi jlittle1. Do I know you from the other SWS group?

The VBF has a group for SWS, the Sturge-Weber Syndrome Community. Please check out our website: http://swscommunity.org

Please contact me if we can be of any help to you.

All the best,
Glenda
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  #12  
Old 07-29-2005, 02:32 AM
Trents grammie
 
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Default Re: HELP! I need advice ASAP!

Thanks again everyone for your advise. Just thought I'd let you all know that my grandson is scheduled for an MRI on Aug. 4th. I will let you all know the results.

Susan
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  #13  
Old 07-29-2005, 03:13 AM
alexasmommy
 
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Default Re: HELP! I need advice ASAP!

Good luck. Please make sure that the MRI is done with contrast. The contrast is very important. Some of the vessells are very small and are seen only with contrast.
Good luck and please let us know how it goes.....
Elena
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