Hi Corrine,
I just posted a message on the board regarding this article that actually ran yesterday. Brian featured the story of me and my daughter. I was quite surprised as we spoke last month and he told me he would let me know when the article ran. I happened to hear about it from a friend of mine at work whose daughter was also born with an "H". Anyway - the link to the article is as follows:
http://www.nytimes.com/2005/12/20/health/20mark.html
I was very happy with it!!!
Thank you for this support group - I am SURE it helps a lot of people make some difficult decisions.