Re: Me again...Kindergartner with pws.
My daughter is in pre k now. She is 4 1/2. She has been on maintenance treatments since she was about 2 years of age.
The decision to go to maintenance was not an easy one to make. The main reason why her Doctor and I discussed maintenence, was because we were seeing no additional fading to her pws. Her Doctor felt that with the current laser technology, this is as much fading as we were going to see. We agreed on yearly for medical reasons to help keep the pws at bay. If I saw progression during that first year, I would have went back sooner, but thankfully we did not.
Corinne is 100 percent correct about getting a second and if needed, a third opinion. I have to be honest in saying that I did not bring my daughter to another doctor for another opinion. My reasons are because her Doctor is one of the best in the Vascular abnormalities field and I felt that he was correct in his assessment. ALso, she has had wonderful fading, more than I ever hoped for. I went into treatments knowing that most pws does not fade 100 percent. There have been very few total eradications since the 1970's. I do not want to "push the envelope" so to speak. These are only my reasons though.........
I have been considering the possibility of trying a IPL laser such as the Photoderm but I would not consider that until she was much older.
I agree with Hank 100 perecnt about needing a person who does not see your little one every day, to give you an honest opinion about fading. I had to do that also. It is so hard to be objective when you see them everyday....