I was just wondering if I could get some feedback from anyone on the doctors below.
I have decided to seek another opinion on my eye condition. I have been doing research on both places in Baltimore and Boston. I have heard a lot about John Hopkins for the PWS/SWS/hemangioma side of the hospital but I am wanting feedback on this part of the hospital.
Here is what I am working with:
In Boston MA
At the Schepens Retina Associates
at Beth Israel Deaconess Med. Ctr.
Dr. Andrew Shachet
Dr. Neil Miller
In Baltimore MD
At the Wilmer Eye Institute
at John Hopkins Hospital
Any kind of feed back on these doctors or there programs would be greatly appreciated.
I have not heard of these doctors before, but I will look into it if Wilmer Institute at John Hopkins hospital in Baltimore MD does not work out. I have an appointment there on the 24th of this month and will be back on the 26th.
Hi Hank, I'm relatively new to the site, but I have been reading your responses. You have a GREAT attitude and a lot insight regarding how to deal with various emotions that go along with having vascular anomilies.
Good luck in Boston.
I work at a convent with the sisters. I'll ask the sisters to put your on their prayer list.... it has amazing results.... it led me to you all. I'll look forward to reading your posts upon your return. Talk with you later, Sarah
Have you had the chance to read the paper I wrote on social issuse? I took my phsycology and early child education class from college and added my experences and wrote a paper. You can either find it in the teen and youth section or on my website www.hankspws.com
Thanks again everybody for your support and I will keep you updated.
An international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate
medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and
supports research and programs that promote acceptance for individuals with birthmarks.
Information accessed through the VBF is presented in summary form
in order to impart general information relating to the diagnosis
and treatment of vascular birthmarks. Such information is not complete
and should not be used as a substitute for a consultation or visit
with your physician or other health care provider. Information accessed
through VBF website is not exhaustive and does not cover every aspect
of vascular birthmarks. VBF makes no warranty as to the information's
completeness, reliability or accuracy. Should you have any health
care related questions regarding this matter, please see your physician
or other health care provider promptly.
Information accessed through the VBF website is provided "AS
IS" and without warranty, express or implied. All implied warranties
of merchantability and fitness for a particular use or purpose are
hereby excluded. VBF shall not be liable under any theory or indemnity.
In no event shall VBF be liable for any damages, direct or indirect,
and all other damages, direct or indirect, special, incidental,
consequential or punitive, are hereby excluded even if VBF has been
advised of the possibility of such damages.