water on the brain? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Reply
 
Thread Tools Display Modes
  #1  
Old 02-13-2005, 05:05 AM
vlifsey24
 
Posts: n/a
Default water on the brain?

Hi everyone. My son is two years old with PWS on his face, head, and neck. We had a ct scan when he was three weeks old and everything came back fine. I was wondering if that was the only time we needed to do that or should we have it done periodically? Our pediatrician said that the birthmark could cause water on the brain.

Also, Corrinne, thank you for recommending Dr. Buckmiller. We are seeing her next month!!

Thanks,
Valerie
Reply With Quote
  #2  
Old 02-13-2005, 05:13 AM
hankbartenbach hankbartenbach is offline
Senior Member
 
Join Date: Oct 2002
Location: Nebraska
Posts: 538
Default Re: water on the brain?

Hi Valerie,

I personally have never heard of water on the brain. I have Sturge Weber Syndrome, how I have it is where my PWS is on my face and head, it is on the brain in the same places. A MRI would tell you if your son has SWS on the brain. I would suggest getting the MRI taken before seeing Dr. Buckmiller, so Buckmiller can see the results at the appointment.

Hank
Reply With Quote
  #3  
Old 02-13-2005, 08:55 PM
nickbar nickbar is offline
Senior Member
 
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,078
Default Re: water on the brain?

I agree, Buckmiller will want to see the films. Is the PWS above and below the eye/eyebrow area?

Glad you are going to see her soon.

Corinne
__________________
Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
Reply With Quote
  #4  
Old 02-14-2005, 05:34 AM
vlifsey24
 
Posts: n/a
Default Re: water on the brain?

The closest the PWS comes to his eye is just a little light mark on his temple. the rest is on his cheek, neck, and head. It's not even on his forehead. I haven't had him checked for glaucoma. Should I? Also, what's the difference between a ct scan and an MRI?

Valerie
Reply With Quote
  #5  
Old 02-14-2005, 03:29 PM
alexasmommy
 
Posts: n/a
Default Re: water on the brain?

Hi Valerie. A cat scan is better at identifying "hard" matter. An MRI is better at seeing "soft tissue or other Vascualr issues.". A cat scan is usually used in regard to SWS to check for calcification. AN MRI can usually see the angiomas or other changes in the brain that are indicitive of sws or other vascular issues.
Most docs opt to wait till the child is a year old to do an MRI. If it is done earlier, they usually repeat it when the child is near a year old. The angioma's are not always seen early on. Calcification is also not always seen early on. AT present, the test of choice to rule out SWS, is a MRI with contrast.
For the child to be at risk for Galucoma, the pws uaually has to be on the upper or lower eyelid. If it is "near" the eye, some doctors may still reccomend that you see an eye doctor.
I hope this helps.
Elena
Reply With Quote
  #6  
Old 02-14-2005, 03:58 PM
hankbartenbach hankbartenbach is offline
Senior Member
 
Join Date: Oct 2002
Location: Nebraska
Posts: 538
Default Re: water on the brain?

Hi Valerie,

It probably would not hurt to get checked for Glaucoma, better to be safe.

Elena was right on about the MRI. Look into it and see what Buckmiller thinks.

Hank
Reply With Quote
  #7  
Old 02-14-2005, 10:57 PM
imported_missy imported_missy is offline
Member
 
Join Date: May 2002
Posts: 80
Default Re: water on the brain?

Totally off topic

I had a friend in college who had water or fluid on the brain, but only on one side. When she was tired or drinking or studying, her head would shake... like she was saying to herself, "no, no, no."

If you sat and talked with her long enough, you would also shake your head, in time to hers.

If other people came and sat down with us, they would also shake their heads.

Soon, there would be a table full of people in the bar, library, class, where ever we were, all shaking our heads!!

I haven't thought about Holly in years... I might go "google" her and see if she's out there!

Thanks for the smile, no matter if it was backwards!

Missy
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Daughter 2 1/2 year old- avm on brain kiddiemom3 Port Wine Stain Help and Resources 10 02-05-2005 04:53 PM
Daughter 2 1/2 year - avm on brain kiddiemom3 General Resources 2 01-29-2005 07:41 PM
Daughter age 2 1/2 avm in brain kiddiemom3 AVM Help and Resources 1 01-21-2005 05:15 AM
Daughter, age 7, has AVM in brain. Help! mom2KandK AVM Help and Resources 6 10-07-2004 12:37 PM