TearJerker, read with caution please seriously - Page 2 - Vascular Birthmarks Foundation Forum
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  #11  
Old 04-07-2009, 09:21 PM
jgoodman0814 jgoodman0814 is offline
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when the headline read tearjerker read with caution, i wasnt expecting it to actually bring tears to my eyes for someone i dont even know. i think with everything that we went through with our daughter and finally getting her the proper treatment, i feel a special closeness to complete strangers who have to go through any type of vascular birthmark. thank you for sharing you story with the world. your daughter is an angel looking over all those who have to endure this.
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  #12  
Old 12-31-2010, 08:19 PM
whaleflower whaleflower is offline
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I'm so sorry that happened to you! I just had twin boys. One of them Justin, has a birthmark on his face and I to keep/kept asking doctors in the NICU what it was and how to fix it, but none of them seemed interested and just said its a birthmark and it will just get big and then small again and go away. lol That to me sounded really stupid so i started researching on the web and found this site. Right now Justin is 1 and a half months old and already this birthmark has changed from a slight pink to a deep red and puffy mark. Its on his right lip and goes up into the area between his nose and mouth. Yesterday i went back to our family doctor and told her i want him looked at by a specialist so she is going to find one for us, but not for two weeks. I'm hoping it dosent get worse in these next two weeks and that we can get in right away to see the specialist. It just feels horrible that nobody seems to take it seriously, nobody in the NICU and not even our family doctor or their specialist they see because they were premies seemed to care.
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  #13  
Old 01-26-2011, 09:17 PM
lizzyh lizzyh is offline
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I am so sorry for your loss! My daughter has a hemangioma on her left butt cheek. It has been a year since it ulcerated and was a deep, open wound for almost three months (Feb-Apr 2010). We took her to a local dermatologist who was no help. Our pediatrician was great and referred us to the nearest Childrens Hospital 4.5 hours away. I've been thinking about her ulcer a lot because it has been a year since it started. I feel so blessed to have received help for her. She received laser treatment to help heal the ulcer and keep it clean from infection. I thank God everyday for my beautiful daughter and her amazing healing. You are in my thoughts and prayers today. Thank you for sharing your story of your beautiful baby girl. You brought tears to my eyes today.
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