Weather associated pain of orbital lymphangioma

I was wondering if anyone else has noticed any discomfort of a venous malformation associated with changes in the weather? I am a 31yo female with an orbital lymphangioma and recently noticed pain when it rains or snows. It reminds me of the effects weather has on my grandmothers arthritis. Has anyone else experienced this?

I definitely notice changes when the weather gets cold or wet. I am 45 yrs old and I've had hemangomias all my life. My first surgery was at 2 yrs old.

I also have an orbital varix behind my right eye. On occassion this bothers me. I've had 6 eye surgeries.

My daughter also has hemangiomas. She had surgery on her left leg and has terrible pain at times when the weather changes.

I've always related this to feeling like I have arthritis. I've had 16 surgeries so I could probably write a book when it comes to hemangiomas and the orbital varix.

Hope this helps.

Felicia