Alexandra was born on July 31st of this year. She had a flat pink spot on her cheek between her nose and her eye that looked like a big "angel kiss" to me. The ped in the hospital didn't specifically say it was a hemangioma, but said it looked like it wasn't going to go away. That was fine with me, because it wasn't very red, and it was level with the skin. When I went to the pediatrician after we got home from the hospital she said she thought it was a hemangioma and referred us to a regular dermatologist. We didn't have time to go right away, and it worked out in a way that I saw another doctor in my ped's office - Alex's hemangioma turned purple and grew above her skin level by then. I did have generic resources about hemangiomas and read that it was a normal process, so we weren't very worried. When the other doctor saw us he recommended that we see Dr. Blei and an ophtalmologist (Dr. Steele in NYC) ASAP. We met with Dr. Blei last week, and she seemed very nice. I liked the fact that she called our pediatrician while we were at the office to discuss the treatment plan for Alex, she also referred us to the same ophtalmologic group as our pediatrician without even speaking with him. She also called us later that week to follow up, to check how our visit to the ped went, and if the reaction to immunization shots was OK (big plus for me - it shows me that she cares...). We are just getting into this, but both Dr. Blei and Dr. Steele recommended that she start oral steroids. Ophtalmologist wants it done "yesterday", which is a bit of a worry factor to me, I really don't want her eye sight to get affected by the growing hemangioma.
My husband also mrntioned to me the other night that he thinks the H is putting too much pressure on our baby's nose, so we'll ask the doctor about that as well. I don't even know what type of hemangioma she has, I never asked the doctor during our first visit. My husband found this site, and I am so grateful he did - this is a great resource and support tool.
Alex is beautiful to us no matter what, but I want other people to see her beauty as well, without staring at her with disguist. She's a wonderful baby and we are exploring all possible options to have her looking the way she did when she was born - a gourgeous little girl