Birth Control for treatment of Ovarian Cysts..and the effect on a VM - Vascular Birthmarks Foundation Forum
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  #1  
Old 02-01-2006, 12:41 PM
KristieinStMarysGA KristieinStMarysGA is offline
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Join Date: Feb 2005
Location: St Marys GA
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Default Birth Control for treatment of Ovarian Cysts..and the effect on a VM

Okay,

I spent all of Monday and most of Tuesday in the hospital, with what I though was appendicitis (sp) after a CT Scan to confirm the append. as blood tests were pointing to it with an elevated white blood cell count. It turns out that the appendix was fine, but rather I had 2 "good size" (Doc's words) cysts on the ovaries. I was then admitted, and had an ultrasound on Tuesday morning to confirm and it was.

The doctor said I have 3 treatment options, one is birth control which he thinks is my best bet, hoping they will shrink, 2nd is monthly ultrasounds to monitor growth, this was brought up when I told him about my VM (which he had no clue what it was, I had to explain it) and 3rd he said is laparscopic surgery to remove them.

The BC treatment option would be awesome, if it didn't bother the VM..Monthly ultrasounds are not what I want to be doing every month, and surgery I guess I would be okay with that, as I am so used to having surgery done lately..

What I really would like to know is if anyone has had a successful birth control pill usage with a VM/AVM... can it be done??

That seems like my best option, and the one the doctor really wants to go with..

Thanks

Kristie
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  #2  
Old 02-05-2006, 01:51 AM
Sarah H
 
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Default Re: Birth Control for treatment of Ovarian Cysts..and the effect on a VM

Hi Kristie, I think we talked on a separate private e-mail. My daughter starts on Provera next Friday. I am scared for her to go on it and scared for not to go on it. I spoke with her doctor at Mayo who spoke with a specialist up that way and he said that it "should" be ok but there is an increased likelihood of her developing a blood clot that could go to her lungs. Dr. Burrows from Boston's Children's agreed that it should be fine. She said that she has successfully treated patients who have AVM's with provera; HOWEVER, when we picked up the medicine today in the precautions it said not to take if you had blood vessel problems without consulting with you doctor because of the increased risk of blood clots.

I think provera is just half of the birth control pack, so it might be the other part that is detrimental for AVM's. I would think if you can have your cysts successfully removed surgically without a lot of discomfort and intervention then that would be a "non-worry" scenerio. But then again, I am not in your shoes. I have had cysts removed before and have even had them to rupture; of course the ones that ruptured I don't know their size and they created a great deal of abdominal pain which eventually resolved itself; however the other ones that were removed were of signicant size and I did have some discomfort with having them removed. Iknow that wasn't much help, but I am sure that you will make a decision based on your specific needs. I hope all goes well. Talk with you later, Sarah
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  #3  
Old 02-05-2006, 03:13 PM
KristieinStMarysGA KristieinStMarysGA is offline
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Default Re: Birth Control for treatment of Ovarian Cysts..and the effect on a VM

Hey Sarah,

Yea, I decided not to take them, after speaking with my Vascular Anaomlies doctor who advised against it. Then speaking with all the women who have had them, I decided to not do anything at this point. If I have the pain again, I know what it's from and if I have to down the road I will have surgical intervnetion. So for right now I am just leaving them be..

Hope everything works out for your daugther, and she feels better soon!
Thanks
Kristie
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  #4  
Old 02-07-2006, 12:01 AM
Sarah H
 
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Default Re: Birth Control for treatment of Ovarian Cysts..and the effect on a VM

Hi Kristie, I know that was a hard decision to make but it sounds like you made the right decision for you. I know that cysts can be very painful when they rupture; however, knowing what they are and what is happening should at least relieve a little bit of your mental anguish.

My daughter called again today in a terrible "dither"; she had started again which basically she has had one continuous heavy period since Christmas. Her gyno never calls back (according to his staff because he is "on call" and when he has emergencies he doesn't have time to call....what a bunch of malarky!) Anyway, I called a family friend who is a doctor and has a lot of clout in the area and he was going to call her gyno for me. 15 minutes later we got a phone call from her gyno he spent at least 15 minutes on the phone with me....isn't that a shame that I had to call someone in order to have him return a phone call. Anyway, he said that my daughter needed to go on provera now and that she would bleed for another two weeks; however for her to go to the hospital if she had severe bleeding or a lot of clots (that's a good thing to think that could happen) She has been beside her self all day (I think her hormones might be playing a role in her feeling that way.

Also, her doctor said that if this didn't work he wanted to put her on lunipro (?) It is a drug that makes the body mimic menopause. Have you ever heard of that? He wanted to know the effects of estrogen on AVM's; if I had any literature on it. Although, I have a lot of information about AVM's, I can't say that I have any direct information on the effects of estrogen on AVM's. Would you know where I could come up with any info for him?

You know I thought it was hard enough dealing with AVM's but now to throw in another "wrench" in the works makes it really difficult. At least I have you all so that I can unload my thoughts and worries. Sorry about rattling, I guess my emotions are getting the better of me today as well. Talk with you later, Sarah
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  #5  
Old 02-08-2006, 05:46 AM
juliemn juliemn is offline
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Default Re: Birth Control for treatment of Ovarian Cysts..and the effect on a VM

Sarah,

I believe Corinne has some information about hormone therapy and AVM's. She mentioned that it was published by Dr. Francine Blei. I also believe that someone in the group of doctors that works with Dr. Burrows has published something, or done some study on this subject. I think it's Dr. Mulliken.

Julie
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  #6  
Old 02-11-2006, 03:17 PM
Sarah H
 
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Default Re: Birth Control for treatment of Ovarian Cysts..and the effect on a VM

Hi Julie, Thanks for passing that info along. Maybe I can look it up, download it and pass it on to her gyno. Nell took her last dose of provera last night. I don't know exactly what it suppose to happen now but at least she made it through the 5 days of the first cycle of it. Have a great weekend. Talk with you later, Sarah
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