Welcome to the support group. Where are you fro?
Maybe I can help and suggest a few doctors w/ up to date lasers to help. I am on another support list ( www.birthmarks.com
).I 'd be glad to do some archive reading there for you.
My daughter,Addie, is 15 with PWS on her complete left torso to her toes. Some days it's darker than others. She does not get laser tx for the PWS , she doesn't seem to care if "it's gone".. IF she did pursue tx, it would be a long process..
She does have some mild laser tx for the sub-cutaneous veins and the vascular issues she also deal with. This is called KT syndrome ( stands for Klippell - Trenauney , just some doctors names...) the laser settings are only about 1/2 strength ...
Addie wears a compression stocking for this issue. Of course , she doesn't wear it to my satisfaction, but she'll learn the hard way. the laser tx she has been getting has helped with her vascular pains tremendouly.
Let me know if I can help you in any way! Again welcome
My direct email is: firstname.lastname@example.org
private link: http://k-t.org/images/temp/addie/addie.html