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  #1  
Old 03-16-2006, 02:29 PM
sondy
 
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Default Liver hemangioma / venus malformation?

hello* i am new here,* my name is sondy i am 42 years old, i just recently had the stomach flu and the doctors ordered an ultra sound of my gallbladder, no gallstones were found , however they found an hemangioma on my liver about the size of a marble. told me not to worry about it , come back in 6 months for another ultra sound to see if there is any growth .aslo told me it could cause some very mild pain, but it was basically a birthmark, that was probably undetected until now.......... for some reason this does not comfort me it scares me . not to mention i am having a hard time finding any information* on this. any help would be greatly appreciated.

* * * * * * * thanks so much

* * * * * * * * * * * * * *sondy
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  #2  
Old 03-16-2006, 04:51 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
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Default Liver hemangioma/ venus malformation?

Often the term hemangioma is used loosely to describe all vascular lesions, when in fact a true hemangioma is most likely not what you have. "Liver Hemangioma" is actually not a hemangioma, but should be referred to as a venous malformation. Most often they are not found in adults until over age 40 and often because something else was going on and the lesion just happened to be found...not because it had been the route of any problems. They are usually found by a routine ultrasound or CAT scan and present no symptoms to the patient. Sometimes patients will have stomach pain, vomiting, anemia or a low platelet count. The only significant risk ,which is very uncommon is that the lesion ruptures and bleeds...might be caused by trauma, (car accident) or pregnancy. These lesions are benign and require no therapy unless they are very large or pregnancy is likely. If there is a need to excised the lesion, it can be done safely by an experienced liver surgeon familiar with liver venous malformations. More often medical monitoring is recommeneded, follow up ultrasound and or CAT scan to track changes.

Let me know if you have anymore questions.

Corinne
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  #3  
Old 03-16-2006, 05:20 PM
sondy
 
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Default Liver hemangioma/ venus malformation?

thank you so much for your reply.... ive been worried about it ever since i was told i had one ( they were looking for gallstones) i dont have gallstones but this hemangioma instead. what was confusing to me was, how did it get there? has it been there since birth ? will it grow ? these are the questions i need answers to, but my doctor didnt seem to know what to say other than i could have it taken out if i wanted but that was over doing it. i just dont know if this is something i should be worried about or not. is it common ? can you have this for ever with no danger to your health ? < sigh > mine is the size of a marble he said. pretty small i guess, but it still worries me.

thanks for understanding

sondy
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  #4  
Old 03-16-2006, 05:36 PM
nickbar nickbar is offline
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Default Re: Liver hemangioma/ venus malformation?

Sondy,

Yes, this was there since birth. Typically these lesions grow with the child, and might have a growth period in the teen years/early 20's due to hormonal changes. It is pretty common and most lesions are not found until an autopsey is done when a patient dies from other causes...not related to the malformation....the patient never experienced any symptoms. You many never have any symptoms and may not be a health risk. It is highly likely that it will not grow, but that is why monitoring is suggested. I can find out advice on how frequently it should be checked for you if you'd like.

Corinne
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  #5  
Old 03-16-2006, 07:47 PM
sondy
 
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Default Re: Liver hemangioma / venus malformation?

that would be great if you could find out for me. i have tried to do some research on this but have founf little to nothing

thank you so much for your replies
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  #6  
Old 03-16-2006, 08:12 PM
nickbar nickbar is offline
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Posts: 1,054
Default Re: Liver hemangioma / venus malformation?

I will let you know when I hear...

In the mean time, you might want to seek an opinion from a vascular birthmark specialist. The ask the expert section on the home page of this site is a wonderful way to get expert advice directly from the specialists. Piece of mind!

Good luck.

I will be in touch.

Corinne
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  #7  
Old 09-13-2006, 12:45 PM
garry
 
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Default liver hemangioma

Hi,

Thanks for your statement. I have just arrived home after a 21 hour stay in ER with much of what you presented with. After ultrasounds and CT scan infusion I was diagnosed with an hemangioma of the liver and bleeding from same which is likely the cause of the pain which I currently remain riddled with. I was relieved to find that at least one other has experienced the same thing as I had. So, again, thank you for that. I was surprised in my case at the rapidity of the onset of symptoms that made me feel it was serious enough to be seen in the ER. Being in health care myself, I try hard to stay away from these environments. I do have some questins of you, however.... In your case, did the doctors say anything about further growth of the hemangioma? Did they mention anything about potentail consequnces of this being on your liver? As I mentioned mine is bleeding, but the Er Doc stated she felt it was not anything to worry about at this time, unless the pain increases or is overly persistent. I think that my symptoms may have been brought on by being very active and I may have done something to aggrivate the condition. Funny how a simple stomach ache and minor pain can be indicative of an internal anomally. Once again, Thank you for your statement. Please respond when you can. Should anyone read this and know more about this condition, please forward your replies. All the best Sondy and to any others with the same experiences.

Garry Wilson
Halifax, Nova Scotia

Quote:
Originally Posted by sondy View Post
hello* i am new here,* my name is sondy i am 42 years old, i just recently had the stomach flu and the doctors ordered an ultra sound of my gallbladder, no gallstones were found , however they found an hemangioma on my liver about the size of a marble. told me not to worry about it , come back in 6 months for another ultra sound to see if there is any growth .aslo told me it could cause some very mild pain, but it was basically a birthmark, that was probably undetected until now.......... for some reason this does not comfort me it scares me . not to mention i am having a hard time finding any information* on this. any help would be greatly appreciated.

* * * * * * * thanks so much

* * * * * * * * * * * * * *sondy
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  #8  
Old 09-13-2006, 01:02 PM
garry
 
Posts: n/a
Default liver hemangioma

Hello Corrine,

Thnak you for your statement in reply to Sondy. Your words have provided me with further information related to my concerns as stated in my reply to Sondy. My most pressing question is, "Should I be concerned?" In the ER, The most pressing issue is treating what the individual presents with. It was initially thought that I was presenting with a gallstone and was being preped for surgery when it was thought there should be an ultrasound performed to verify if the diagnosis was the case. Good thing, too! Imagaine having had the surgery. Of course, it couldn't be that simple anyway.... The first radiologist looked at the ultrasound and determined there was a "mass" which appeared to be a lession or abscess. He could not conclude and asked for a second consult after which a specialist did the ultrasound himself and said hew anted to look further at my liver. He suggested a triphasic liver CT Scan at which was found this condition and the bleeding. I am still experiencing pain. I will visit my GP to brief him on this and have him obtain copies of the reports. Any further advice? Thank you in advance.

Garry Wilson
Halifax, Nova Scotia
ripleybanfield@ns.sympatico.ca

Quote:
Originally Posted by nickbar View Post
Often the term hemangioma is used loosely to describe all vascular lesions, when in fact a true hemangioma is most likely not what you have. "Liver Hemangioma" is actually not a hemangioma, but should be referred to as a venous malformation. Most often they are not found in adults until over age 40 and often because something else was going on and the lesion just happened to be found...not because it had been the route of any problems. They are usually found by a routine ultrasound or CAT scan and present no symptoms to the patient. Sometimes patients will have stomach pain, vomiting, anemia or a low platelet count. The only significant risk ,which is very uncommon is that the lesion ruptures and bleeds...might be caused by trauma, (car accident) or pregnancy. These lesions are benign and require no therapy unless they are very large or pregnancy is likely. If there is a need to excised the lesion, it can be done safely by an experienced liver surgeon familiar with liver venous malformations. More often medical monitoring is recommeneded, follow up ultrasound and or CAT scan to track changes.

Let me know if you have anymore questions.

Corinne
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  #9  
Old 09-27-2006, 02:27 AM
serralee
 
Posts: n/a
Default Liver Hemangioma

It was recently discovered that I have a liver hemangioma. It started with a flu like symptom. After a sonogram was done, all my other organs were found to be fine, but the liver had a hemangioma. I still feel some pains and I have a lot of gas. I wonder if anyone else has that?
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  #10  
Old 09-29-2006, 01:51 AM
garry
 
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Default

Hello Junior Member,

You are not alone. As my previous notes mention I was recently diagnosed with what I now know are two large vascular anomolies in/on my liver and spleen. I presented with very painful gastric upset and discomfort as well as sharp stabbing like pains. The pains remain to this day (three weeks later). I have been off work and am unable to do any heavy work at all. I am scheduled to see an hepatic surgeon on Monday the 2nd of October.

I hope you are doing well and will not have to experience that which I am.

All the best

Garry
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