My name is Melissa and I have a PWS covering my right arm, back and chest. My insurance pays for my laser treatments because laser is a necessity. Most PWS are caused my malformed blood vessels. The blood vessels do not close properly which causes increased blood flow...leading to the discoloration of the PWS. If this condition is not corrected it could cause the blood to create pools in the veins, which would lead to skin malformations. Laser surgery destroys the malformed blood vessels and creates new, normal blood vessels. I'm not sure where you're located but Dr. Louis Argenta is my plastic surgeon here in North Carolina (U.S.). He is the chief and director of the plastic surgery department at Wake Forest Baptist Medical Center. He is one of the best plastic surgeons on the East coast. He could help you! I highly recommend him or one of his colleagues.
My insurance would not pay for the "cosmetic surgery" I had to receive due to my PWS. My PWS covers my right breast, which made it two cup sizes larger than my left. At the age of fifteen I had to have a breast implant in my left breast. The insurance said that this was a cosmetic procedure and my family had to pay for the surgery. Luckily doctor Argenta worked with us and helped out our financial situation. My insurance still denies that this surgery was necessary...but I guess since they weren't the ones having trouble fitting in to bras and bathing suits, they wouldn't know!
Please contact me if you need any help or information!