I have a friend that has PWS on her spine, but do not know if she has SD with her condition. She does have a lot of back problems thoguh and is always in pain. During her three pregnencies she had a lot of problems as well. All three of her children have PWS as well, but her youngest child has the most severe with Sturge-Weber Syndrome.
My friend also thinks she could have SWS as well because of the PWS on the top of her had and has a couple symtoms of SWS.
If you are interested in talking to her email me at email@example.com
and I will send you her email.
Hope this helps.