Hi new to forum - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo

1994 - 2014
Celebrating 20 years with
75,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

   VBF 20th Anniversary Gala Friday, October 10, 2014 in New York City

VBF 2014 Annual Conference Saturday, October 11, 2014 in New York City

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > AVM Help > AVM Help and Resources

Reply
 
Thread Tools Display Modes
  #1  
Old 09-25-2006, 11:51 PM
donna48
 
Posts: n/a
Default Hi new to forum

I am a 48 yr old female, I was diagnosed at age 9 with cavernous hemangioma, which had been present from birth, in my left hand three fingers. I now believe it must be a venous malformation, from th e research i have been doing. I have had five surgeries to strip the veins, and one session of alcohol injection, i beleive it is called sclerotherapy. None of these procedures have helped in the long run, short term yes. I am finding as i age it is becoming difficult to use my hand. At present i am suffering with my middle knuckle. It is always "popping" out of joint. If i shake my hand it seems to realign itself. Apparently, the bones in my fingers have become deformed, why i am not really sure. My doctor has recently retired and i am looking for a new one. I am not sure i want to go back to a plastic surgeon, i would rather see someone who specializes in venous anomolies. I am having difficulty finding someone in canada. Does anyone know of a specialist for adults in canada?
Any help you can give me would be greatly appreciated.
Thanks donna
Reply With Quote
  #2  
Old 09-26-2006, 02:01 AM
missy missy is offline
Administrator
 
Join Date: Apr 2006
Posts: 1,723
Default

Hi Donna,

Try this resource:
http://www.birthmark.org/physicians_list_us.php#Canada

Let us know if you need us to look further. Could you possibly come to the states?

Missy
Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Surgery at Kaiser? pichpaw Help and Resources for Hemangiomas 18 03-22-2008 01:53 PM
first time on this forum carole Adults Living with Birthmarks 0 02-10-2008 11:50 PM