1st treatment was Tuesday for my son
Hello Everyone!!
My son had his first treatment for his PWS on Tuesday. WHEW!!!! Glad that is over. It was not at all as bad as what I expected. His doctor in Alabama placed numbing cream on his forehead and we left it on for 30minutes. We gave him a dose of Tylenol with Codeine by mouth, but I think it made him hyper. He cried of course, when we wrapped him up in a blanket, the nurse covered his eyes with gauze. I listened but could not hear him crying any diffferently when the laser was on. The treatment took maybe 10-15 seconds.With the perfecta laser. His doctor told me she was conservative because this was his first treatment. Spot size 10mm/ 7.5joules. His PWS is on his forehead,approx nickel sized. He is 19months old. The night of his treatment the PWS maybe looked a little swollen, but no purple. Maybe a little more reddened. Have any of you experienced this? We have been putting Aquaphor ointment on every couple of hours, and they told me to keep him out of the sun. Is it necessary to keep him in even though, it appears healed without really any sign that anything was done. THank you all for answering my questions. Our next treatment will be in 6-8 weeks.
Thanks,
Lorie J
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