LVM on left neck - Vascular Birthmarks Foundation Forum
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Go Back   Vascular Birthmarks Foundation Forum > Hemangioma Help > Lymphatic Malformations (also known as cystic hygroma and lymphangioma)

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  #1  
Old 10-14-2012, 08:03 PM
nataliegutman nataliegutman is offline
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Join Date: Sep 2012
Posts: 2
Unhappy LVM on left neck

hello,
my son is 2.5 years old, diagnose with LM at neck.
we didn't do any treatment yet and we don't have much support in israel.
maybe you can share with me your experience, i don't know how you live with that. i nervous about every time he gets sick.
maybe you can share with me what you have gone through.
many thanks
natalie
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  #2  
Old 11-07-2012, 09:31 AM
jom jom is offline
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Join Date: Nov 2012
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Hi, I am a 41 year old who lives in the Uk, This is something that I still suffer with today, Now through my life this has varied, sometimes I get a mild ache, another time infections, sometimes it can be quite painfull, and other times nothing for months. I have had numerous surgery, the only thing I can honestly recomend is massage. This was given to me by A surgeon quite a few years ago, Not many doctors understand or are knowledgable about this subject, I had one doctor convince me I was seriously ill, this was not the case, most of the info on the net about this condition is correct, as no one has studied these birth defects at length, there are quite a few opinions,
Ihave not let this hinder me in any way or hold me up and to be honest has made me a stronger person. ...... jom
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