lips

[sahmby28]

My daughter has a pws covering the majority of her face. She has had several laser treatments (every 4 weeks to 2 months since she was 6 weeks old). We have seen some lightening through out the entire face, but she definitely isn't close to being finished yet. What I have noticed now is she has very full lips and we have been told that she has the stain on the inside of her mouth. When could the tissue in her mouth begin stretching (if it is going to)?

[hankbartenbach]

Hello,

I have PWS on the inside and ouside of my lip and upper gum.
My PWS did not stretch at all, it just grew with my face as I got older. but it did not stop growing. Some doctors say that hormons make the birthmark grow. In my case, it diffently has grown. I have had plastic surgery to remove some of the extra tissue in my lip. Not everybodies will grow since everyperson is different.

I hope this helps.

Hank

[superstripe]

This is the first time I have heard of that. Are you talking about the lip being pushed down, so it looks uneven? This is something that I have noticed in the past 5 years or so. I always thought that once the PWS fades, that'll improve too. But when I asked Dr. Nelson at Irvine this past week, he said something about talking to the plastic surgeon at their site. I am confused.