Minnesota Mom with young daughter vm

[mom s]

Hi, I have a daughter who is 3 1/2 years old and has a venous malformation of her right cheek and lip. We have just had a consultation with Dr. Clay at Mayo Clinic in Rochester. His thought was to do Sclerotherapy with Sotradecol. Have any of you experienced this and if so what are your thoughts or outcomes. With the research I have done and the doctors we have talked with it seem that laser therapy would be a non toxic way of approaching this. Has anyone had laser therapy and be willing to share your experience with it?

[KristieinStMarysGA]

Originally Posted by mom s

Hi, I have a daughter who is 3 1/2 years old and has a venous malformation of her right cheek and lip. We have just had a consultation with Dr. Clay at Mayo Clinic in Rochester. His thought was to do Sclerotherapy with Sotradecol. Have any of you experienced this and if so what are your thoughts or outcomes. With the research I have done and the doctors we have talked with it seem that laser therapy would be a non toxic way of approaching this. Has anyone had laser therapy and be willing to share your experience with it?

Hey!

Believe it or not, I have a neighbor who has a granddaughter with a VM on her lip, she has just had her first laser treatment and it looks good so far. I'm not sure on what type of laser was used, although I do know she will have multiple treatments.

I have a VM througout my left arm/elbow, and have had sclerotherapy using ethanol alcohol. I had 2 treatments total, and was just told by a doctor at Mayo in Jax FL, that any further treatments (using sclero.) would be too risky as the VM is now very small.


I'm sorry I don't have better advice, if I were you I'd go with what feels right and make sure you are beyond comfortable with the doctor who will be doing the procedure.

Go with your gut.


Feel free to ask me anything...

[mom s]

Hi, thanks for the information. I was wondering if maybe you could find out what kind of laser treatment your neighbor's granddaughter had? Was it surface laser or did they actually insert the laser into the veins?

Thanks,
Mom S

[KristieinStMarysGA]

Originally Posted by mom s

Hi, thanks for the information. I was wondering if maybe you could find out what kind of laser treatment your neighbor's granddaughter had? Was it surface laser or did they actually insert the laser into the veins?

Thanks,
Mom S

I will, she actually goes back for another treatment on March 3rd.

[KristieinStMarysGA]

I did ask her mom what type of laser was used and she didn't know.

Poor little thing was very swollen, but kept on smiling.

Hope your little one is doing okay.

[mom s]

Thank you for asking!