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  #1  
Old 07-08-2008, 02:01 AM
Cinderella22 Cinderella22 is offline
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Join Date: Nov 2007
Posts: 10
Unhappy Need Info Please!!!

A-V Malformations from left shoulder to finger tips, diagnosed at 5yrs. old Dr. have called them everything. I've had 9 surgeries and an ulna nervre graft.... with no sucsess!! Now I'm hoplessly dragging my M.R.I films around and there is not a Dr. in TN. willing to or has the knowledge of this disease thats caused me so much pain for 30 yrs. I cant believe I found this website I'm not alone in this the Dr's always made me feel like some kind of an oddity! Is ther any where to start? To top it off I do not have health insurance so even if I found some one not sure if i could afford it. I just keep PRAYING that one day a Dr. will say oh yea I can help you no problem.

Last edited by Cinderella22 : 07-08-2008 at 02:10 AM. Reason: DIDNT LIKE
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  #2  
Old 07-08-2008, 11:49 AM
missy missy is offline
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Have you talked to Dr Yakes, in Colorado?

Missy
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  #3  
Old 07-15-2008, 03:04 PM
KristieinStMarysGA KristieinStMarysGA is offline
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Quote:
Originally Posted by Cinderella22 View Post
A-V Malformations from left shoulder to finger tips, diagnosed at 5yrs. old Dr. have called them everything. I've had 9 surgeries and an ulna nervre graft.... with no sucsess!! Now I'm hoplessly dragging my M.R.I films around and there is not a Dr. in TN. willing to or has the knowledge of this disease thats caused me so much pain for 30 yrs. I cant believe I found this website I'm not alone in this the Dr's always made me feel like some kind of an oddity! Is ther any where to start? To top it off I do not have health insurance so even if I found some one not sure if i could afford it. I just keep PRAYING that one day a Dr. will say oh yea I can help you no problem.
I understand how you are feeling, I have a VM from left elbow/forearm with a lot of invovlement with the elbow joint. When I sought treatment (after finally getting the right diagnosis!) I didn't have health insurance, but luckily my parents enough money to get me in the door at Swedish (Ten grand for hospital and 2 grand for Dr.Yakes up front).

Ask one of the experts on the main page and hopefully they can point you in the right direction.
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  #4  
Old 07-22-2008, 04:09 PM
nickbar nickbar is offline
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Email Dr. Rosen on ask the expert. If you need any help, please feel free to email me.

Corinne
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