5 month old about to go for Beta blocker treatment - Vascular Birthmarks Foundation Forum
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  #1  
Old 10-18-2010, 03:35 PM
Sonya Sonya is offline
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Default 5 month old about to go for Beta blocker treatment

Hello,
I just discovered this site while searching for information for my daughter.
She has a hemangioma on her left breast which appeared about 2-3 days after birth, kept growing and is now basically 2 things: a bright strawberry colored mark about the size of her little hand; and underneath this is one that looks like a blue colored bruise but its raised like a bump you get on the head.

We live in paris france and were sent to a specialize because the bump appeared to keep getting larger and because of where it was located and the risk of it affecting her breast development.

The specialist told us about the discovery made in Bordeaux France on beta blockers. We are now signed to start the treatment in a hospital in france in 1 week. She spends 48 hrs in the hospital to ensure she doesnt have a hypoglycemia problem - then we continue the treatment at home.

I am finding very little information about risks to taking beta blockers. Surely there has to be some risk to taking a medicine like that. Yet there seems to be little info out there and much excitement in France about this new discovery.

Should I be worried about this treatment? Where can i find out more about how it works and any risks it might have?

Thanks,
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Old 10-18-2010, 08:04 PM
jkmorgan333 jkmorgan333 is offline
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If you Google "side effects of Propranolol" you can find a host of results. One problem is that there is not a whole lot of information about the side effects of the drug on children since it's not often that kids have a need for beta blockers and the use of propranolol for hemangioma treatment is so new.

The most common side effect that I've heard is the hypoglycemia and mottling of hands and feet. We've not had either of those problems in the 3.5 months my daughter has been on propranolol.
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Old 06-08-2011, 04:52 PM
Iorlova1 Iorlova1 is offline
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Hi Sonya.

My daughter is 6 1/2 months old and she has a left subcutaneous breast hemangioma. It started growing when she was 2 months old, and it's slowly getting bigger. We have seen many specialists who told us to wait and see.

I just couldn't sit around and do nothing. We finally saw dr. waner in NYC. He prescribed her propranolol. I'm just wondering how your daughters hemangioma is and if propranolol helped to shrink it.

Thank you!
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Old 06-09-2011, 01:40 AM
mensell09 mensell09 is offline
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My daughter just started propranolol today and my doctor told me that he has not seen it not work on any hemangioma.
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