Firstly congrats on your beautiful daughter!. I read your story and it really makes me angry because of the ammount of ignorance out there about birthmarks!. Like you my daughter (now two months old) was born with a facial PWS and inncorrectly diagnosed three times by pieditricians (sp?). I presume you are in the UK?. The best resource we found by along was was the birthmark support group. Visit the web site(www.birthmarksupportgroup.co.uk
) its all based in the UK and has a list of numbers to call. They put us through to a specialist at great Ormand Street called Jane Lindwood. They have a specialist department just dealing with vascular birthmarks. My wife and I have seen them twice and have a series of laser treatments booked. The support group will be able to advise you where to go locally and put you in touch. We stopped bothering with GPs etc along while ago
From what I understand (Im not a doctor but know exactly how you feel) its important that you get in touch with a specialist as PWS as in a small number of cases PWS can be asocaited with something called Sturge Weber that need to be discounted so you need to see a specialist
Lasering is posible and definately something we are doing. Given yours is 6 months they should be able to do a test spot and we are doing it via the NHS, so yes you can. We have been told she will need anumber of treatments and have planned to do them all before she starts school
Try not to be upset about the marks not goin on their own. I know I have been but I've seen some great before and after treatments and laser technology is improving all the time and I think that if they can now totally remove tattoos then they can remove a natural red mark!!. Even if we dont get 100% clearance then there are lots of specialist covering foundations.
So get in touch with the support group (its a charity and all free) and they will point you in the right direction. Any problems or advice or if you are really worried email me back or I'm on 07779998928.